Palliative Care Plan project

cumbria icon North East and North Cumbria
Researchers involved Katie Brittain, Northumbria University
Main disease areas impacted Palliative care
Key partners North Tyneside CCG, Northumbria Healthcare NHS Foundation Trust, Vocare, North East Ambulance Service NHS Foundation Trust, North East Clinical Network, Northumbria University, Palliative Care teams in community and acute setting,
Advancing Potential project management, Community Health Forum, North of England EPaCCs Network, Palliative Care Network, North Tyneside Local Authority
Start and end dates July 2017 – March 2019

Project overview

The Palliative Care Plan project is a pilot in North Tyneside to develop a scaleable integrated electronic care plan for patients on the Palliative Care Plan Register.

For patients who are receiving end of life, or palliative, care it is essential that healthcare services who come into contact with the patient know how and where the patient wants to be treated.

Patients can have a conversation with their GP, palliative care team, or hospice team about their treatment preferences, and the results of these discussions can then be information shared in real time.

The most current and key information can then be shared electronically in real time with other healthcare services such as ambulance, out of hours and emergency departments. Healthcare professionals in other settings can then be confident that the patient has already expressed their wishes and they can care for them appropriately.

Palliative care pathway project – presentation.

Dr Kathryn Hall, GP explains more about the project.

Palliative Care Pathway - stakeholders

Why is this research important?

The project has initially been developed to test the possibility that the technical solutions implemented work, and that patients benefit from information about them being shared appropriately. Once the project has been completed, the intention is for the same model to be rolled out across the rest of the North East and North Cumbria.

The team works with a regional network and the plan is to share the learning and the processes they have gone through so patients living in other parts of the region can benefit from their information being shared.

The outcomes of the project are being evaluated Northumbria University.


Who will benefit from your research?

Patients and their family and friends living in North Tyneside when they are at the end of their lives. It removes one worry from what can already be a distressing time.

Healthcare professionals caring for these people will also benefit from greater awareness of patient preferences and previous treatments.


What will be the intended outcome of your research project?

It is firstly about bringing benefits to patients and helping them to be cared for and to die in a place of their choice.

By using the pilot project and learning from the outputs – the technical solution needs to be accepted by the professionals using it and supporting the concept of the project being a Learning Healthcare System.

The implementation of this care plan is dynamic process and the evaluation of this process will enable us to gain an understanding of the professional and organisational factors that promote or inhibit the acceptability, usefulness and integration into service delivery and everyday practice.